BLOG.IHAVEMDS.COM: Recent Comments

Comment on I robbed my daughter

Susie Kadleck — Mon, 01 Feb 2010 04:17:01 GMT

You did not rob your daughter, in fact you gave her the best gift you could have ever given to her. You gave her yourself and a lesson in surviorship and coping with whatever comes in life that will strengthen her throughout her lifetime. You taught her that miracles happen if you keep on believing and have have faith enough to wait. You were the best gift that you could ever give to her. She will always treasure her memories of you being strong enough to face your adversity and win. You gave her the gift of love on her 21st birthday.

Comment on A mothers love

Connie Marie Perez — Sun, 04 Oct 2009 17:44:03 GMT

Diabetes is life threatening if not properly cared for. I know I was diabetic, until I had cancer removed from my stomach and intestines. I'm no longer diabetic. However I remember injecting myself and poppin' pills, daily. It sucked!

Hang in there my friend. Eat right,exercise(when you can) atleast 15-30 min,a constant movement 15-30 min worth. To decrease or lower diabetes number.

All I can say is that prayer is the power. Don't forget that.
I pray for you and pray lots for your fight against this illness.

Well soon your B-day wll be here.Oct 25th,haaa thought I forgot, Nope! Happy B-day... Incase I'm unable to email ya.

My B-day is Oct 28th. October babies, ROCK!!!!

Many smiles, blessings and prayers.

Luv ya,
Connie Marie

Comment on A mothers love

stacie — Fri, 02 Oct 2009 06:25:00 GMT

Roger,

I am so sorry to hear about this latest challenge confirmed about the GVHD. I know each case is different but keep the faith. Tami has now had acute GVHD twice (intestines now skin) and has been diabetic twice due to steroids. But things are getting better. As you know, it just takes time and careful monitoring by her medical team. On the upside the GVHD isn't all bad. I've read online and Tami's doctors have told her that a little GVHD is a good thing. It means you will have less chance of relapsing. If your donor cells are strong enough to attack your own body it means they're strong enough to attack any new myelodysplastic cells that may present themselves in the future.

If you no longer have web access I will send you old fashioned, snail mail, letters.

Keeping you in my thoughts and prayers Roger,

Stacie

Comment on Last post before I go to my parents and wait for the call that my bed is ready.

stacie — Mon, 28 Sep 2009 17:02:59 GMT

Roger, I can only imagine your anxiety waiting for the news. Keeping you in my thoughts and prayers that the call is good news and that your recovery will move forward without further complications.

Comment on Making plans for a return admission to MD Anderson

Stacie — Fri, 25 Sep 2009 16:15:17 GMT

Roger you're doing a lot. You've been recovering these past 6 months. Though I haven't been through it myself I saw Tami 2 months post transplant and I can say that recovering is a full time job. For someone who is active and motivated working hard is easy compared to taking it easy. But that's what your body needs right now.

I hope your liver is ok. I know both times Tami has been on Prednisone for her GVHD it's thrown her sugars out of whack making her temporarily diabetic. She's needed insulin both times she's been on it :( I hope if that's what's going on it's temporary and only lasts until you can stop taking the steroids.

Hang in there Roger. We'll be blasting your blood drive on Tami's blog and my blog for you.

*Hugs*

Comment on Making plans for a return admission to MD Anderson

Crystal Abbott — Fri, 25 Sep 2009 03:10:35 GMT

Hey Roger,

Wow, your world has been flipped upside down. I think what you are doing for the community is great! Elva Lisa seems to be a grown up lady with goals and ambition, you have directed her in a great way. I hope that all of your community service will not go unacknowledged and appreciated. I'm sure your cocktails aren't as good as Bud Light and BBQ, but in the end, I pray that your hard work and effort to survive will be rewarded with new friendships, grand children and most of all an old age for you. I love you and hope that the hospital knows they have an ass kicker for a patient. -Crystal

Comment on Rick Perry & Rudy Guilliani on television together?

Cin — Wed, 16 Sep 2009 16:25:39 GMT

Yes, Roger, a good book can take you away! I've traveled and dreamed through books. (plus, they don't judge you or talk back to you!) Hope you enjoy the one you are reading and get another book right after that one. I don't have much time to read anymore and, now, I'm usually so tired at the end of a day, that reading puts me to sleep! But I do enjoy listening to books on tape, since I drive 45 minutes each way to work, daily. This is why the library is one of my favorite places. I go 2-3 times a week.

As far as politics, we should try to vote in someone other than a Rep as our next governor, but sometimes, it's "slim pickens" with the characters that run, and Texans usually vote in a conservative governor.

Comment on Two four letter words a transplant patient does not want to hear

Cousin Cin — Wed, 16 Sep 2009 14:31:20 GMT

Roger, I'm SO SORRY to hear about this latest set back. I also thought that "no news was good news". Without your continual updates, I thought (hoped) that things were going well for you. I'll go back to praying for you. Your mom and sister are in my thoughts and prayers as well.

Comment on Two four letter words a transplant patient does not want to hear

Ronda Rodriguez — Wed, 16 Sep 2009 13:27:08 GMT

Stay strong. Hey better living through chemicals, thats what it is all about.

Comment on a black knhight

Stacie — Wed, 02 Sep 2009 14:11:08 GMT

Hey Roger,

Sorry to hear you are so low. I don't quite understand what is going on. Are you feeling anti social because you don't feel well? Or just antisocial in general? When you say confined is that by choice or by doctor's orders?

I know the sun exposure is bad for people who have had chemo. I brought Tami a sun hat that she can wear when she is better and going out and about. It's cute because it has a really wide brim but at the same time it's collapsible so she can fold it up and put it in her purse.

I just went to Seattle and saw Tami for 4 days last week. Thanks to your blog I was somewhat prepared to see her. I learned a lot from reading your blog. Most importantly was to not talk too much, to give her space but at the same time be there in case she needed anything or wanted to talk. I also knew not to hover and everyday my mom and I would step out to the store or such so that she could have some time alone too. It was a nice visit but I was so sad to see how sick she still was at roughly +60 post transplant.

On the third day while I was there she was readmitted to the hospital as she was fighting a viral infection and her GVHD reappeared for the second time attacking her skin. But true to her nature she just keeps plugging forward at mending and healing. She is so courageous, and so are you. All patients who undergo this lifesaving but traumatic experience are.

Roger hang in there. This is a black cloud for sure that you are under but it will pass. Maybe not as quickly as you want it to but eventually it will. I hope some of your friends and family members can start visiting you again. Why don't you ask them to come by and let them cheer you up?