a black knhight
It has been many weeks since my last post. I think I may have lost more than blood in those chemotreatment. Im comfined to the wals of this room. Prolonged exsposusure to the sun effect me. Interaction with others has been nil. I Just rescheduled another doctor visit.
So, all I can do now is keep my nose clean and hopr ai can help my daughter. I have evn bee called anti-social. If I ever needed help, it is now when i am am mental lowesest
So, all I can do now is keep my nose clean and hopr ai can help my daughter. I have evn bee called anti-social. If I ever needed help, it is now when i am am mental lowesest
Hey Roger,
Sorry to hear you are so low. I don't quite understand what is going on. Are you feeling anti social because you don't feel well? Or just antisocial in general? When you say confined is that by choice or by doctor's orders?
I know the sun exposure is bad for people who have had chemo. I brought Tami a sun hat that she can wear when she is better and going out and about. It's cute because it has a really wide brim but at the same time it's collapsible so she can fold it up and put it in her purse.
I just went to Seattle and saw Tami for 4 days last week. Thanks to your blog I was somewhat prepared to see her. I learned a lot from reading your blog. Most importantly was to not talk too much, to give her space but at the same time be there in case she needed anything or wanted to talk. I also knew not to hover and everyday my mom and I would step out to the store or such so that she could have some time alone too. It was a nice visit but I was so sad to see how sick she still was at roughly +60 post transplant.
On the third day while I was there she was readmitted to the hospital as she was fighting a viral infection and her GVHD reappeared for the second time attacking her skin. But true to her nature she just keeps plugging forward at mending and healing. She is so courageous, and so are you. All patients who undergo this lifesaving but traumatic experience are.
Roger hang in there. This is a black cloud for sure that you are under but it will pass. Maybe not as quickly as you want it to but eventually it will. I hope some of your friends and family members can start visiting you again. Why don't you ask them to come by and let them cheer you up?
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